I found out about pentosan polysulphate sodium in an email some news company sent to me. I looked and decided that's for me. And then the fun started. No chemist in my town had heard of the stuff and that's where it came out the chemical is great for horses. None of the vets I knew wanted to sell it to me and then I found this link. bingo
I will be getting my first lot early next week so this blog will be a tour through the trip of human testing of a horse drug. My doctor has agreed to monitor me, she has hundreds of patients loaded with osteo and one with the brains or idiocy to try to fix it himself. I wont name my doctor until she wants to be named, I am unsure of the ethics of letting a patient self test on what was basically horse medicine until a chance discovery it helps with osteo arthritis.
For the politicians, I am a disabled pensioner and have had to give up buying food this week so I could afford the medicine.
For those reading the blog I can feed the pair of us from the garden for a month or three and there is about 4 months of food in the pantry and freezer. But I planned to have bought a $150 worth of food to top up things.
The cost of the medicine is $210 delivered and that is 3 months of the nasal spray. The idea is I use until the joint pain goes. Because I am on a lot of pain killers for my almost ceased up hip, bung knee and vertebra from when I broke my back playing rugby I will go off the pain killers one day a week to see how the horse medicine is working. I will try to log what's going on in this blog.
Any reporters or media outlets who want to use what is in this blog please pay the going rate. I know there are almost standard rates so it would be nice if you gifted them to me in the paypal bit below. If it is The Guardian the rate is double until Lenore Taylor and Vanbadham unblock me and apologise for the birther rantings.
For anyone using this in their own blog, think about a gift for the poor old bastard undergoing a trial that may benefit a lot of you.
If you decide to try it yourself make sure you contact your doctor first. You will need a script and then let Complementary Compounding Services know you heard about it from me.
This isn't a properly set up medical test, there is nothing that would match the magnificent work of researchers in our universities but its a start from a bloke who wants to try and help.
27 September 2017Filled in the online form, the prescription button near the top Needed to scan my prescription to send with it, I used Cam Scanner and hey presto. Next to do is to post the original script to Complementary Compounding Services and wait for them to give me a ring for the credit card details.
3 October 2017
The sniffing has started, the nasal spray arrived today. Two sprays up each nostril once a day. I will do the next report on the 10th.
5 October 2017
Just a reminder this isn't a scientific trial, there are no double blinds, no daily monitoring. It is me. Two days of sniffing and my ankles don't click when I rotate my foot. With the sniffing, lean back to do it and don't be frightened to sniff in the fluid in your nose. No idea if that is collected spray or nasal juices reacting to the spray coming into your nose. Suck it and see, keep it in the body it my be good for you and at worst can't harm you. I had a walk to buy some fruit at the greengrocers in town. Recently a short walk like that would be extremely painful in the hip and back for two days afterwards. No problems.
8 October 2017
Definitely feeling different, lighter? Or lighter headed? Strange feeling all over. Not unpleasant, softer, smoother, lighter is the best way to try and describe it.
Waking up with very dry mouth. Don't know if it is the pentosan?
9 October 2017
No painkillers started this morning, will be interesting to see how that goes. Last night was left hand side clicking night. Joints from ankle to knee to hip to shoulder all got vocal which they haven't done for 12-18 months. Does that mean the joints are freeing up,not as swollen? No idea,like I said this is not a scientific study just a record of what happens to me. I will google it and see what doctor google says about joints becoming vocal.
17:20pm hip starting to ache. I will sleep without pain killers and see how things are in the morning.
10 October 2017
Early AM and a bit of pain in hip and knee. Will go back on pain killers after breakfast.
11 October 2017
Some very loud joint cracking last night, mostly hip. Audible to my wife so wasn't internalised. Major pain in back this morning,more muscle than joint. Yesterday & this AM found hip moving where it hasn't been for a while and causing sharp pains.
Today is my shopping day.,the day where I try to be as normal as possible and put up with the bastard pain. It's the butcher, the baker, the green grocer and a newsagent that sells lotto tickets. (so many local newsagents are not selling lotto because tatts has imposed a $30,000 fee on them) The pain is sharp and bad but I don't think it is as knockout bad as last fortnight. I am holding a lot of hope in this horse pill nasal spray.
14 October 2017 Pain from walking eased up a lot quicker than "normal". Joints clicking and clacking, is that because the swelling is going down or the buildup of arthritic material is lessening> Don't know, time will tell.
16 October 2017Another day off the pain medication to see how things pan out. Some pain but can be handled. Doctor lowing pain medication by a third to see how that goes. I will start it again in the morning. Expensive medication for a pauper but if you do have osteo arthritis I would recommend you look at at least trying it.
Walked around town today, dog food, bakery, chemist for pain medication. Got wet but could do it. My joints seem to have freed up quite a lot.
19 October 2017
A warning for anyone who decides to use the horse pill nasal spray. I am in what might be called extreme pain today. I don't think the medicine has worn off or the reduction in my pain killers was too much. I had three days of a little walking and muscles that haven't been used for a long time are telling me to ease up a bit.
Thank you to those who have PayPal'd me, much appreciated. Being PayPal I can't thank you personally because your personal details are kept private. Very much appreciated to have the support, in gifts or words, from so many people over the past few years.
Cheers thanks & goodonya